...about 75% ketchup...

Day three. Come and gone.
So, it is amazing how tiring cooking, eating and cleaning up can be! I mean really, that is about all we do all day! The Toft house, where the therapy is located is rightly named. Although it IS an office, it looks just like a house. We arrive, prepare breakfast and sit down with Lorioux to eat. Then we clean it all up while we bolus the rest of Mic's breakfast. By the time that is done its snack time, so we do that and play with the children. Then its time to get lunch going. We eat that, clean up and do another bolus. By the time that is done, its snack time again...another game and perhaps a quick extra activity (grocery shopping, or a dip in the pool) ...and, yup! you guessed it, hurry up becacause we are going to be late with supper! And whew, by the time supper is all done and cleaned up we are exhausted and it time to get that last water bolus in and get the kids changed and to bed. And believe it or not, that is basically our day.
At the toft house there is a kitchen, living room and dining room area and plenty of toys and books to keep the children occupied. And plenty of space for us to be compfortable, so we really are just there most of the day.
Mic is doing really well. She struggles most with swallowing. We are learning that keeping her talking during the meal, ironically, is what helps her most to keep eating, that and also giving the next bite even though part of the last one is still there in her mouth also kind of helps her keep things moving. That is exactly oposite of what I would have thought, and is unique to her and her needs.
Today she took over 300 oral calories again. I think it was about 340, if I remember right. A very high percentage of that was ketchup. At one point she was eating just a spoonful of plain kethcup, nothing else to go with it. All the good things on her plate and that is the only thing she wanted in her mouth. I think we are going to play around tomorrow with some ketchup-like foods that have other ingrediants blended in to see if we can help the nutritian intake at all.
Right now, calories and nutritian feel like a tug of war game to me. It feels like an either/or situation instead them going hand and hand. That is frusterating to me. I hope it is just temporary,...we are still just on day 3, right!?!